June & July 2007: Titer down to 1:2-4, Liver normal
Denise's appointment with the infectious disease doctor was loaded with news that put smiles on our faces. Her liver labs all came back within normal... even the Alk Phos! Considering that she had complete liver failure & was yellow in the hospital two years ago, and had what is suspected to be cocci-caused granulomas in the liver last year, this is amazing! Better yet, the cocci titers came back from U.C. Davis at 1:2-4, lower than the 1:8-10 that we heard about six months ago. So things are progressing nicely. Her next test will be in October, as will the next visit to the I.D. doctor. Denise is trying the South Beach diet and feels like it's helping get her back to her pre-illness weight and reduced the ab swelling (recent scans show no ascites, indicating no presence of infection). So we're relieved to have some grasp of how to cope with the onset of the GI-related problems since she came down with Valley Fever.
This summer has been so much better than two summers ago (when Denise was in a coma) and last summer (when she was doing so much rehab). I got off work for the summer in June and life's been good! My school honored me by dedicating this year's yearbook to me, and they also had wonderful things to say about Denise continuing to heal & thrive as a testimony to God's mercy (not to mention the hard work of the medical teams). We gave Jacob his summer haircut (mohawk). We went to court for the first time ever (and hopefully the last). It was just small claims court, and it was surprisingly low stress... nothing like Judge Judy. We went to Disneyland and were treated to a night at the Disneyland Hotel (the kids loved the Peter Pan-inspired swimming pool there). We went to visit Denise's sister & brother-in-law in Montana for a few weeks (this picture of Denise was taken in Philipsburg MT). We crammed in a lot of first-time activities for the kids: a visit to Yellowstone, fishing, horseback riding, driving a boat, going to a dirt track car race, and Gracie even learned how to shoot a rifle and took horseback riding lessons. I tried wakeboarding (I'm exactly as unsuccessful at that as I am at water skiing). And we celebrated our 10th anniversary in July. A couple years ago, I didn't think that we'd make it to this point, but I sure am grateful that we're here!
This summer has been so much better than two summers ago (when Denise was in a coma) and last summer (when she was doing so much rehab). I got off work for the summer in June and life's been good! My school honored me by dedicating this year's yearbook to me, and they also had wonderful things to say about Denise continuing to heal & thrive as a testimony to God's mercy (not to mention the hard work of the medical teams). We gave Jacob his summer haircut (mohawk). We went to court for the first time ever (and hopefully the last). It was just small claims court, and it was surprisingly low stress... nothing like Judge Judy. We went to Disneyland and were treated to a night at the Disneyland Hotel (the kids loved the Peter Pan-inspired swimming pool there). We went to visit Denise's sister & brother-in-law in Montana for a few weeks (this picture of Denise was taken in Philipsburg MT). We crammed in a lot of first-time activities for the kids: a visit to Yellowstone, fishing, horseback riding, driving a boat, going to a dirt track car race, and Gracie even learned how to shoot a rifle and took horseback riding lessons. I tried wakeboarding (I'm exactly as unsuccessful at that as I am at water skiing). And we celebrated our 10th anniversary in July. A couple years ago, I didn't think that we'd make it to this point, but I sure am grateful that we're here!
6 Comments:
Wow!! How GREAT is our God!!!
Still praying for you and your family, and so glad to hear the wonderful news!
just checking in and glad to know how things are going! I'm so glad y'all have had such a great summer!
Just wanted to say hello, and that we are glad to hear Denise is doing so well. It is nice to see you had a very fun summer. Tell Denise a couple from Show Choir said we are still praying for her continued recovery, and for your family. Take care, and God Bless.
Hello Phil, I sat a few seats over from you in Glendale Arizona on Saturday 9/15/07 at the Valley Fever Survivor event and recognized your family's ordeal when you stated your wife was "Pulling for Denise".
I just finished catching up where I'd left off this morning and just wanted to say WOW! It's so wonderful to see that things are progressing so positively now for Denise. I am so happy for her, and your family.
At the time I was diagnosed with VF in Oct 06, it had been a 3 year struggle to get answers to why I was having so many bouts of pneumonia and such. It was the result of being diagnosed with Thyroid Cancer and subsequent pneumonia that caused concern that cancer might of spread into my lungs that resulted in the diagnosis of VF; and even then I had to PUSH for the blood test, which was done reluctantly. The test came back positive and thus my journey began.
My body continued to fight off the virus without diflucan, however in August of this year a CAT revealed that I have a cavity in my lungs now and my numbers have risen. I've just started the anti-fungal therapy. So what was initially a search to learn all I could about VF symptoms, now I'm focused on how I can best help my body heal and fight off this virus.
What makes this so scary is to see what Denise has gone through, and nobody can tell any one with VF just how it is going to impact their lives.
I will continue to stop in now and then and enjoy readying about her continued recovery and your lives.
God Bless,
Kerrilynn
Phoenix, Arizona
Hi Phil and Denise,
This is Lauren Lindroth and I just saw your posting on my brother Ryan's page. I had tried to access your site from work soon after we met you at the Napa Rose but the website was blocked :( Sorry it has taken me so long to say hello. I'm so pleased to hear how wonderful you are doing Denise!!! What a wonderful blessing for your family. We are feeling thankful for God's grace in our family too :)
With love,
Lauren
Good post.
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